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Support Groups

DBS Support Group
Parkinson's disease Support Group
Dystonia Support Groups
SFYOPD Support Group Meeting
Blepharospasm, Meige Syndrome, and Hemifacial Spasm Support Groups

DBS Support Group


San Francisco DBS Support Group
Meets every other month (Jan, Mar, May, July, Sep, Nov)
2nd Thursday of the Month, 6:00pm - 8:00pm
400 Parnassus, 8th Fl Neurology Conference Room
San Francisco, CA
Contact Lee Schwager, facilitator at 415-601-6456 or .(JavaScript must be enabled to view this email address)

Parkinson's disease Support Group


Young Onset Parkinson's Disease Support Group
Meets on the first Tuesday of every month from 6:30PM-8:00PM
400 Parnassus, 8th Floor Neurology Conference Room
San Francisco, CA
Contact Monica Volz, Movement Disorders Clinical Nurse Specialist at 415-353-8328

San Francisco Parkinson's disease and Caregiver's Support Group
San Francisco VA Medical Center
4150 Clement Street, Building #200, Room 1A-122
Free Parking by the flag pole.

For questions, please call 415-379-5530
Support Group Coordinators:
Susan Heath, RN, MSN, Movement Disorders Clinical Nurse Specialist
Elaine Lanier, RN, MS, Clinical Research Nurse Manager
Robin Taylor, MSN, FNP, Clinical Research Manager, Neurology
No need to be a VA patient to attend. All persons with PD, their caregivers and family members are welcome to attend.


Dystonia Support Groups


San Francisco Dystonia Support Group
Every Other Month (Feb, Apr, Jun, Aug, Oct, Dec)
Next Meeting: 8/5/14 at 6:00pm
UCSF Neurology Conference Room
400 Parnassus Ave., Eighth Floor
San Francisco, CA 94143
Contact Whitney Jory at .(JavaScript must be enabled to view this email address)


SFYOPD Support Group Meeting

Tuesday, 5/3/16
6:30-8 PM
400 Parnassus, Neurology Conference room (8th floor)
(No speaker at this meeting but I’m sure we’ll have a lively discussion anyway…)
Future speakers:
June 7 – Dr. Philip Starr, UCSF Neurosurgeon (DBS and the Brain Radio research project)
July 5 – Anne Hall, Esquire (Working, disability, etc. with Parkinson’s)

Blepharospasm, Meige Syndrome, and Hemifacial Spasm Support Groups


San Jose Area Support Group
Next Meeting: Saturday March 15, 2014
1:00-3:00pm
Lincoln Glen Church, Fireside Room
2700 Booksin Ave.
San Jose, CA 95125
Patients, families, friends, and doctors welcome!
Contact Kathy Berg at (408) 270-9787 or .(JavaScript must be enabled to view this email address)

Essential Tremor (ET) Support Groups, Northern California


For more information: email lETF's California /Ambassadors, Sharon Alexander, .(JavaScript must be enabled to view this email address) or Joe Bremhorst, .(JavaScript must be enabled to view this email address)

East Bay ET Support Group
Meets 3rd Saturday each month
10:00 am- Noon
San Ramon Regional Medical Center
6001 Norris Canyon Road
San Ramon, CA 94583
Contact Sharon at (925) 487-5706 or .(JavaScript must be enabled to view this email address)

Peninsula ET Support Group
Meets 4th Saturday Each Month
2:00 p.m. -4:00 p.m.
Kaiser Redwood City Medical Center
1190 Veterans Blvd.
Redwood City, CA 94063
Contact Deanne at (650) 591-9362 or .(JavaScript must be enabled to view this email address)

Silicon Valley ET-Dystonia Support Group
Meets 1st Saturday Every Other Month
2014 dates: January, March, May, July, September, November
10:00 a.m. -12:00 p.m.
St. Louise Regional Hospital
9400 Noname Uno
Gilroy, CA 95020
Contact Lynda at (408) 847-8649 or .(JavaScript must be enabled to view this email address)

Roseville ET Support Group
Meets 1st Saturday Each Month
10:00 a.m. - 12:00 noon
Kaiser Roseville Medical Center
1600 Eureka Road
Roseville, CA 95661
Contact Paula at (916) 771-4866 or .(JavaScript must be enabled to view this email address)

North Bay ET Support Group (New Group)
Meets 4th Saturday Each Month
10:00 a.m.-12:00 noon
Marin General Hospital
250 Bon Air Road
Greenbrae, CA 94904
Contact Satoko at (415) 300-7107 or .(JavaScript must be enabled to view this email address)

Tiburon ET Support Group (New Group)
Tiburon, CA
Meetings to be announced
Contact Richard at (415) 944-0278 .(JavaScript must be enabled to view this email address)